122. Empathy, an inquiry (1:00:53)

Date:
2014-10-08
Main contributors:
University of Virginia. School of Medicine
Summary:
In this Medical center hour, prize-winning writer Leslie Jamison inquires into the phenomenon of empathy. It may be something more fraught then we often imagine it to be. Empathy isn't just an instinctive reaction but a more complicated blend of intuition and decision. And it's not neccessarily an unequivocal good. It can mislead. It can exhaust. Ms. Jamison draws on her experiences as a standardized patient, working with and observing student doctors getting "trained" in the practice of empathy, as well as her experiences as a journalist, inhabiting a vexed state of empathy for her subjects, to consider a variety of perspectives on what makes for good empathy and what good it can do. A John F. Anderson Memorial Lecture

123. Eros and illness: a caregiver's tale (1:03:25)

Date:
2017-03-15
Main contributors:
University of Virginia. School of Medicine
Summary:
The caregiver—whether a family member pressed into service or an underpaid home-care aide—is a representative figure of our time. This status is paradoxical because actual caregivers (so often female) do their work largely out of sight and almost in secret. It is an uncanny representative figure whom we do not see. Writer and scholar David Morris spent over a decade as caregiver for his late wife, Ruth, a medical librarian who in her mid-fifties began to show signs of dementia, most likely earlier-onset Alzheimer’s disease. In this Medical Center, Morris describes his experience but also uses his personal caregiving as a fulcrum for opening up larger questions about what biomedicine often overlooks in its molecular vision of illness. Desire is the neglected force that Morris sees as basic to illness, and it is the role of desire in illness that he seeks to clarify. Desire, it turns out, also offers an unanticipated common ground where health-care professionals—caregivers too in their medical role—may meet with patients and families in mutual, richer understanding. A John F. Anderson Memorial Lecture

124. Escaping the melodrama of the ethically impossible, the U.S. sexually transmitted disease studies... (1:02:29)

Date:
2012-09-12
Main contributors:
University of Virginia. School of Medicine
Summary:
In 1990, University of Pittsburgh Public Health Professor John C. Cutler delivered to the university's archives thousands of pages of documents and photographs about an unpublished research project that he ran in Guatemala for the U.S. and Guatemalan governments between 1946 and 1948. Duly cataloged, the files then sat in the library until the mid 2000s, when historian Susan Reverby began to read them as part of her book project on the Tuskegee syphilis studies. Who knew that the infamous U.S. Public Health Service Study of Untreated Syphilis in Tuskegee, Alabama, had an off shore successor? Unlike Tuskegee, the Guatemala studies led by Dr. Cutler involved actual inoculation of sexually transmitted diseases and the paying of sex workers to transmit disease. Unsuspecting and unconsenting prisoners, soldiers, mental patients, and sex workers participated; only some were treated if and when they became infected. In 2009, Professor Reverby returned to the Pittsburgh archive, and in 2010 she wrote up her findings on the Guatemala project. She shared her unpublished article with the late David Sencer, former director of the Centers for Disease Conrol (CDC), who gave the article to the current CDC leadership. The CDC prepared its own report and sent it, along with the Reverby article, up the chain of command to the White House. On Oct. 1, 2010, Health and Human Services Secretary Kathleen Sebelius and Secretary of State Hilary Rodham Clinton apologized to the Guatemalan government and President Obama telephoned then President Colom in Guatemala to explain. In the spotlight of worldwide media attention, presidential commissions in both countries undertook investigations, and survivors of the study filed suit against the U.S. government. The Guatemala study and its aftermath have urgently renewed debate about the ethics of clinical research involving human participants, especially research carried out with vulnerable populations and in the global arena. In this Medical Center Hour, Susan Reverby discusses how her discovery of the Guatemala study files set in motion international investigative and diplomatic processes and what we can learn from this ethically immoral use of medical science. Bioethicist John Arras, a member of the Presidential Commission for the Study of Bioethical Issues, will comment on the commission's investigation and its 2011 report, Ethically impossible: STD research in Guatemala from 1946 to 1948.

125. Every patient tells a story (1:01:04)

Date:
2013-10-02
Main contributors:
University of Virginia. School of Medicine
Summary:
Physician-author Lisa Sanders, who writes the popular "Diagnosis" column in The New York Times Magazine and "Think Like a Doctor" blog for the New York Times, probes the crucial exchanges between doctor and patient that are at the heart of every medical mystery and its solution. The Koppaka Family Foundation Lecture in Medical Humanities

126. Experiment eleven: dark secrets in the discovery of a wonder drug (1:01:42)

Date:
2016-02-24
Main contributors:
University of Virginia. School of Medicine
Summary:
In 1943, Albert Schatz, a young PhD student at New Jersey's Rutgers Agricultural College, was working on a wartime project testing bacteria from farmyard soil when he discovered streptomycin, a new antibiotic that was the first effective drug against the global killer tuberculosis. Schatz’s professor, Selman Waksman, claimed all credit for the discovery, calling Schatz a mere bench worker, and secretly enriched himself with royalties once the drug was patented by pharmaceutical manufacturer Merck. Schatz fought back in what was one of the most vicious battles ever for credit of a major scientific discovery. Schatz won the title of "co- discoverer" and a share of the royalties, but, in 1952, Waksman alone was awarded a Nobel Prize. Schatz disappeared into academic obscurity. This Medical Center Hour features journalist Peter Pringle, whose recent book Experiment Eleven probes this gripping, scandalous story and its diverse global repercussions— for scientific inquiry and mentoring, for research ethics, and for the evolution of Big Pharma. Co-presented with the History of the Health Sciences Lecture Series, Claude Moore Health Sciences Library

127. Extraordinary stories of ordinary life: Radio Diaries (1:03:33)

Date:
2019-01-23
Main contributors:
University of Virginia. School of Medicine
Summary:
January 23, 2019 Joe Richman Since 1996, the Radio Diaries project has been giving people audio recorders and working with them to report on their own lives and histories. Collaborating with teens and octogenarians, persons with chronic and terminal illness, prisoners and prison guards, gospel preachers and bra saleswomen, the famous and the unknown, the project tells extraordinary stories of ordinary life. With stories aired on NPR, BBC, This American Life, and its own podcast, Radio Diaries has pioneered a new form of citizen journalism and, along the way, garnered every major award in broadcast journalism. This Medical Center Hour welcomes Radio Diaries’ founding director, Joe Richman, to share stories and draw parallels with health care practice, where, daily, clinicians traffic in the “extraordinary stories of ordinary life.” The Edward W. Hook Lecture in Medicine and the Arts / Medical Grand Rounds Co-presented with the Department of Medicine, UVA

128. Fair Ellen (04:24)

Date:
Summary:
Performance location: Roanoke County, Virginia, United States

129. First nations' resilience: two communities take on an epidemic (2:01:44)

Date:
2017-09-27
Main contributors:
University of Virginia. School of Medicine
Summary:
When the First Nations of Big River and Ahtahkakoop in Canada's Saskatchewan province realized they had an HIV epidemic within their rural communities, their leadership and health centers rallied community members to determine the social and structural issues behind the epidemic. One of the driving factors proved to be injection drug use. Big River and Ahtahkakoop then developed culturally competent, community-based care to address the intertwined issues of HIV, hepatitis C, and substance use. In this presentation, spokespersons from these two communities describe how they took on these epidemics and discuss the solutions that have worked for them. What can other communities struggling similarly with substance abuse and related infectious disease outbreaks learn from these First Nations' grassroots responses? Are there lessons here for communities in Virginia, where, on average, three people die each day from opioid overdose? Co-presented with the Department of Medicine and the Center for Global Health, in conjunction with the conference, "Best Practices in Community Mobilization in Response to Substance Use and Related Epidemics"

130. Five easy steps to metaphysical fitness (1:01:34)

Date:
2013-10-09
Main contributors:
University of Virginia. School of Medicine
Summary:
Emily Levine does for science what Jon Stewart does for news: she critiques it, she makes it relevant, she makes it funny. She brings her experiences as a patient in search of a diagnosis and a curative path to physical health and notes that in order to regain metaphysical health, she had to enter a universe of randomness, uncertainty, and turbulence. She reasons that only quantum physics and chaos theory can make sense of this new universe, and possibly of medicine today. A John F. Anderson Memorial Lecture